Patient Advocacy Groups
Organizations that support patients and families, and speak up for them.
ALS
The ALS Association
Local care services, certified clinics, equipment loans and advocacy.
Visit FTDAFTD
Association for Frontotemporal Degeneration — HelpLine 1-866-507-7222.
Visit ALSI AM ALS
Patient-led community and policy advocacy.
Visit ALSALS United
Network of regional ALS care and support organizations.
Visit ALSLes Turner ALS Foundation
Patient services, support groups and research.
Visit ResearchALS Therapy Development Institute
Nonprofit research lab with a free patient research program.
Visit FTDBluefield Project to Cure FTD
Research consortium focused on FTD caused by GRN mutations.
Visit SpanishALS Hope Foundation / Fundación ELA
Ask the ALS Association for Spanish-speaking care services coordinators.
Visit